Because people with cf have to go to clinics regularly to get checked out, they got to know each other.
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Different locations for people with cf to go for their medications, or have the school nurse visit each student in their separate classrooms to administer the medications.
Cystic fibrosis dating each other
Two carriers have a child, the baby has a 1 in 4 chance of having cystic fibrosis.
'one particularly dangerous infection is pseudomonas aeruginosa, which causes chronic and destructive lung infections in cystic fibrosis patients.
The students with cf to be in other common gathering areas, such as the gym, at different times.
"this problem of loneliness has come out of the success in treatment," said laurie fink of the not-for-profit cystic fibrosis foundation.
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'people with cystic fibrosis struggle to absorb food as the digestive tract gets clogged with mucus, so the twins have to eat a calorie-rich diet.
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, like most people with cf, brooks protects her physical health and the health of others with cf.
With regular checkups, one can never be absolutely sure what kind of bacteria is growing at a given moment, and if a person with a particularly vicious bacteria passes it to someone who doesn't have it yet, he or she can inadvertently quicken the other's decline.
And marcus suffer from cystic fibrosis, a genetic disease that affects about 1 in 2,500 white americans.
'people with cystic fibrosis arent allowed to mix, so we have to be really careful.
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Play marco-polo in the supermarket -- "we go to different aisles and find each other by the sound of coughing" -- have slightly ironic slumber parties at their parents' homes and aren't above making out at the bar after a few drinks.
'when one has an infection, they cant kiss each other or share anything that they are using or eating from.
A person with cf becomes ill while in school, one student can go to the health office, another to the principal's office and a third to the counselor's office.
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For all students with cf to be as far away as possible from the assigned locations of other students with cf.
Meets her need for connection with others like herself through her work -- she does consulting for companies that work in cf treatment -- and through working with people who have loved ones with cf, such as parents and caregivers in the boston area.
And cfmedical studies show that people with cf are at particular risk of spreading certain germs among others with the disease.
"it's a struggle," said clement ren, director of the cystic fibrosis center at the university of rochester.
There is more than one person with cf in your school, it is essential that they be kept a minimum of 6 feet (2 meters) apart from each other.
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Small, a published writer and a columbia university graduate, subscribes to a personal philosophy that values intimacy with others who share her experience above all else -- even if it could mean she will get sicker faster.
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The social needs of sufferers wasn't a problem when cystic fibrosis was first brought to the public's attention: children weren't expected to live past their second birthdays.
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Murphy, director of duke university's cystic fibrosis center, says things changed in the early 1990s when data started trickling in from treatment clinics around the world.
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